The PHG Foundation warmly welcomes the recently published WHO principles for human genome data collection, access, use and sharing. It is a timely and important contribution to global governance, ...

Denver Health’s experience with more inclusive self-reported race and ethnicity data collection offers lessons for other health systems, and highlights the need for guiding principles for data equity.

Safety, security, accuracy, reliability and confidentiality of personal information remain at the top of the priority list of African countries working on improving their data governance frameworks.